A Huntington's Disease Support Foundation
created by the Fratkin family.
At the heart of EFHD is the Fratkin family: Erin, who is living with Huntington’s disease (HD); her husband Bryan; and their kids Molly, Cas, Rose, and Genevieve.
Created to fund HD research, support those within the HD community, and raise awareness for this rare, genetic, neurodegenerative disease.
Why EFHD?
A name for Erin.
And a little bit for HD, too.
The name “EFHD” is pronounced “Ef HD” as in, well, you know, “F*CK HD”. It’s also conveniently Erin’s initials.
What is Huntington's Disease?
The disease most people have never heard of.
And that's exactly the problem. Here's what we wish everyone knew.
What is Huntington's Disease?
The disease most people have never heard of.
And that's exactly the problem. Here's what we wish everyone knew.
Slowly affects
HD is an inherited neurodegenerative disease that slowly affects movement, thinking, and mood together — it's often described as ALS, Parkinson's, and Alzheimer's in one. It usually arrives in the middle of a life.
It's a coin flip
HD is an autosomal dominant genetic disorder, meaning if one parent carries the gene, each child has a 50/50 chance of getting the disease. A simple genetic test - the coin flip - will determine the result.
There's no cure - yet
Treatments can ease symptoms, and research is closer than it has ever been. Families, care, and funding are what move it forward.
What's next
Join us for our inaugural event.
October 10, 2026
Drew Holcomb
and The Neighbors
Hippodrome Theater
Richmond, VA
Richmond, VA
(Family and Close Friends Only)
Stay close.
We'll write when it matters.